Thread: New to site :)
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Old 03-20-2014, 06:36 PM
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Nanc Nanc is offline
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Join Date: Jan 2011
Location: VA
Posts: 975
10 yr Member
Nanc Nanc is offline
Member
Nanc's Avatar
 
Join Date: Jan 2011
Location: VA
Posts: 975
10 yr Member
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Hi Bri, welcome to NT. Sorry you have to deal with RSD/CRPS.

I have had RSD for a little more than 23 years. It started in my face and around 7 years ago it started to spread with new injuries. I now have it through most of my body. With so many failed treatments, I finally got two SCS's (cervical and thoracic) implanted in 2011. I had a revision to the thoracic SCS 5 months after implant, leads changed out for paddle leads and moved the battery. They were awesome. They allowed me to get through another 1 1/2 years of work. After that 1 1/2 years, the effectiveness began to wear off. The thoracic paddle migrated and that relocated battery was twisted and hurting. My neurosurgeon thought it best to remove them then do another revision, so I had both SCS's removed this past January.

Have you had yours reprogramed? A month is pretty soon to say it will not help. Plus you are still recuperating from the surgery. It took me MANY long programming sessions to get the right coverage and stimulation.

There are quite a few on NT that have had success with these helping thier RSD pain. I hope yours starts helping your pain soon!
Nanc
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"Thanks for this!" says:
Bri594 (03-31-2014)