Thread: My TOS Surgeon Search on the East Coast
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Old 03-20-2014, 08:52 PM
parbie parbie is offline
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Join Date: May 2012
Location: Orange County
Posts: 188
10 yr Member
parbie parbie is offline
Member
 
Join Date: May 2012
Location: Orange County
Posts: 188
10 yr Member
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Quote:
Originally Posted by jkl626 View Post
Der Parbie,
So nice to hear from you after all this time. I am sorry you have had so many family troubles but happy you have found Dr. D. Are you living in Boston now? I do Yoga and mindfulness meditation classes to help calm my nerves and I am doing pretty well right now. with all I have gone thru this past year it is an absolute necessity.My right side is much better. I started having some trouble on my left side tho and am going back down to see Dr. Ando

I am also trying :
Frequency Specific Microcurrent with an acupuncturist which seems to be helping calm the nerves in my neck
Pool therapy-not sure how much this is helping
Am Starting Strengthening with an Osteoball
Neurontin-600 mg at night-may try it during the day

Hoping to be able to go back to work in May. Take Care-JKL

Hi JKL,

I am glad to be back and to hear from you as well. I am so happy you are doing better, that is such great news! I hope your left side will get better, and there is a lot of hope since PT and the other therapies you have incorporated in your recovery have been working well for your right side. I am not in Boston, I will PM you later, I am trying to keep my whereabouts known to very few people due to the issues I have recently been through. What is an Osteoball? And did you continue the similar things you were doing before the past few months to help your right side feel better?

I am also on the same dosage of Neurontin but I also take it at night and I cant live without it which is sad to say. The meds I have been on since surgery I have not been able to taper down due to my difficult recovery and I am REALLY hoping that when I get rid of the seroma, things will go more smoothly, as I also want to get back to school and work. I do not have much support where I am but I am getting along ok I guess. Just staying focused, also working on changing what I eat a bit as I am always feeling very exhausted and get through 1/2 a day before I need to just lie down and do nothing.

Please keep me posted on how you are doing, will PM you soon
__________________
Parbie

-6/20/14 Seroma Drainage Right Side

-7/18/13 Re-do of Right sided Supraclavicular Thoracic Outlet Decompression by Resection of Cervical Rib, First Rib, and Neurolysis

-8/30/12 Unsuccessful Right sided Supraclavicular Thoracic Outlet Decompression via Scalenectomy, Brachial Plexus and C2 through T1 Neurolysis, Resection of fibrous band attachment to Cervical Rib and Pectoralis Minor Tenetomy
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