I'm sorry you had such a hard time getting your rsd confirmed. Since I've had rsd, I felt like I struggle every day trying to get my family, friends and drs to understand what I'm going through and research new things that can maybe help put this monster into remission. I usually get blank stares with no desire to try something new. My drs don't seem to want to help me with the new drugs out there. I feel that because I've had rsd for about three years, that they have given up on me. My family keeps telling me that if just tried harder to loose weight and exercise that I would feel better. I get criticized by my drs when I bring new drugs that may help to their attention. They say they can't help me with that. To see a rheumatologist. My rsd is spreading and they won't even give me anymore nerveblocks. I was told to wait unit Spring. Why am I waiting? My drs hardly ever see me anymore. They keep cancelling my appts and have me see NP who don't know or care to know anything about my condition or tell me they have seen worse and that I'm doing good. On my last pm appt yesterday, I told that same NP that even though I may look normal to the eye, the constant pain I feel inside from rsd is horrific. I was given another blank emotionless stare. I don't care, at least I stood up for me and my rsd family here on this forum. My family pretty much thinks I'm lazy because I don't keep the house clean enough and don't contribute enough to the family chores. I wish I could tell you that it's an easy road to travel when diagnosed with RSD. But in my experience, it's been one of the loneliest, painful and depressing roads I've ever traveled. On a positive note, I can say that because I still need my family and drs for support, I have become more proactive in learning as much as I can about RSD and never giving up trying to get them to know and understand the horror I live in everyday of my life. It has made me a stronger person because I won't give up trying to raise awareness on rsd and will keep trying to educate my family and drs and np's until they start to get it. My advice to to you is to never give up trying to find the right drs to help and never give up trying to get better and most importantly never give up on trying to get family and friends to understand how devastating having rsd is. Having made friends on this forum has given me the strength to do that. Hold on to your friends here. They are priceless.