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Old 03-21-2014, 04:06 PM
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ker0pi ker0pi is offline
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Join Date: May 2013
Location: California Coast
Posts: 67
10 yr Member
ker0pi ker0pi is offline
Junior Member
ker0pi's Avatar
 
Join Date: May 2013
Location: California Coast
Posts: 67
10 yr Member
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Erin,

I've been taking Ampyra for 3+ months and it does help some people.
For me it was a miracle and has helped me with my arms, shoulders, wrists, fingers, neck and cognitively, as well as walking. At the end of my first 2 months I went 3 days without using my cane.

My neuro signed me up for the Ampyra program and I received 2 months free to see if it worked for me. It did so I turned it into a prescription.

My insurance has Ampyra listed as a Brand Name Formulary drug and covers it at $30 or 30% of negotiated price up to $200 per 1 month supply. Then I signed up for Ampyra's co pay assistance. They pay $160 of that $200 and I only pay $40 per month.

Without it I would have had to quit working after my Thanksgiving attack.

Since Ampyra is willing to give you two months free to try I don't understand why your neuro isn't signing people up to try.

From what I understand the compound he suggested for $60 is not always identical in efficacy and can vary from batch to batch which is why Acorda (sp) Therapeutics turned it into a sustained release tablet.

Good luck, I hope you at least get to try it. For the people it works for it is invaluable.
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"Nothing has changed, but everything is different" -Hubby's statement after I received diagnosis.

-DX RRMS 12/2013
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