Oh Bram! I wish I had some helpful suggestions. I'm glad you have some answers and are on track to get the right treatment, even though it is always frustrating to have to wait to see a specialist.

You are doing really well toughing it out with just paracetamol. I think you are absolutely right that you need to feel what is going on so you don't accidentally do any damage. You've got quite enough damage already! Poor thing!

Hang in there!

Kim