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Old 03-24-2014, 12:46 AM
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Bipedal Primate Bipedal Primate is offline
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Join Date: Feb 2014
Posts: 32
10 yr Member
Bipedal Primate Bipedal Primate is offline
Junior Member
Bipedal Primate's Avatar
 
Join Date: Feb 2014
Posts: 32
10 yr Member
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July 2012, it started with:

-- double vision (diplopia).

-- Left Eye started to cross inward (esotropic strabismus).

-- Left eye-brow and left eye-lid is noticeably lower than the right eye (Ptosis).

-- wrist and arm weakness; I started dropping stuff constantly and I could not hold my arms
up for more than 30-60 seconds at a time.

-- ankle weakness; began tripping more.

I was not diagnosed until I saw an 'Ocular-Neurologist' in January 2014.
-- The doctor just looked at me and pointed out the "ptosis" which I had never heard of, and sent me that day to have a blood test for AChR antibodies. Two days later the test results came back positive and she gave me a prescription for Mestinon 60mg 3-4 times a day.

In February 2014, I had an MRI and CT chest scan. Both were normal / "unremarkable."

In early March 2014, I saw a regular 'Neurologist' who specializes in Neuro-muscular Disorders. She ordered these tests:

-- Single Fiber EMG and RNS (repetitive nerve stimulation). Both results were "normal."

-- Antibody Blood Test to rule out other Neuro-muscular diseases.
AChR -- NEGATIVE <<second time tested>> [I tested positive in January]
AChE -- NEGATIVE
Titin. -- NEGATIVE
RyR. -- NEGATIVE
MuSK. -- NEGATIVE
Anti-Yo -- NEGATIVE
Anti-Ho -- NEGATIVE
Anti-Ri -- NEGATIVE
Anti-Ampiphysin -- NEGATIVE
Anti-CV2 -- NEGATIVE
Anti-MA2 -- Low POSITIVE, but she ruled it negative (whatever that means?)
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