Thanks guys. Here is what I do know.

THey are inflammed and spasm. I know this based on a test the endo did where the result showed an all over inflammtion in the blood vessels. It hurts.

I saw the rheumy last week and she did some more tests so I see her on Tuesday. Just want to make sure its not vasculititeis or reynauds.

But then me and hubby discussing it and wondering if maybe it could still be the TOS.

My feet juat get so cold like there is a vise on them and then it travels up my legs. Same with the hands.

Also having trouble breathing and finding myself chest breathing and taking some deep breaths that are hard to take like the phrenic nerve or diaphragm is not working.

Just thining it through that maybe those pesky ribs are at it again. Time to break out Sharon Butlers book.

Any and all thoughts welcomed.

P.S. Dawn I bought those warmer things off ebay too. But even the heating pad is not helping warm the feet and hands.