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Old 03-25-2014, 07:24 AM
MG?me MG?me is offline
Junior Member
 
Join Date: Jan 2014
Posts: 11
10 yr Member
MG?me MG?me is offline
Junior Member
 
Join Date: Jan 2014
Posts: 11
10 yr Member
Confused At the Mayo Clinic ??????

I am at the Mayo Clinic in MN. Saw Neuro yesterday and after talking to me for 20 minutes he did some basic test in office and told me I don't have MG.
He suggested that I had sleep apnea. He wants to do another emg. I asked if he looked at the reports from the ones I had (3) and he said no. MY Neuro who has been seeing me every 2 wks since Sept. has run so many tests and I brought them all with me. He Has been treating me for MG and I have had 3 rounds of IVIG in the last 3 months (5day-3day and 2day)
My last IVIG was 6 days ago. I asked the Mayo DR if the IVIG could alter his basic test (eye not drooping after I swear he did 3minute test) he says I don't know!
My Neuro had sent me for 2nd opinion in Dec to Loyola in Chicago and blood test came back positive for MG. Mestinon 3-4 times a day helps me. IVIG helps. Mayo Dr. says stop taking the meds. NOW WHAT ???
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