Thanks Vrae and Tessa!
My husband pointed out that I also cough a lot when I am talking quite a bit, like on the phone or in a heavy conversation. This is all so frustrating...and scary! So I was given two name of drs to see for this. One of them is in the university hospital system here, so I found his email address and emailed him
He said that he is no expert in RSD, but probably knows a bit more than a general ophthamologist. He does not usually treat pain syndromes and doesn't recall RSD causing double vision or drooopy eye, but if it effects the face "I suppose that's possible". Also said that he imagines the dr I saw wants him to rule out any other potential causes. The other dr is in a neurological practice that I went to before and left because the NP I was seeing turned into a real jerk.
Tessa - I have an appointment with a dr on May 2. I saw him 1-2 years ago for my right shoulder. I wanted to try someone in that practice that would focus more on PM, but since I saw him before I have to see him first. If he can't help me, he has to "release" me and refer me to one of his partners. Such a pain (pardon the pun)!! I was able to get in with the NP earlier, but that was a waste of time. She didn't know what to do with me because of all my allergies. The only suggestion she had was warm water pool therapy. But there is the transportation issue again. Hubby is off every other Friday so I try to schedule appts then. Pool therapy does not have Friday appts at all and the latest appt the other days is 3:00. He works an hour from home - leaves at 6:00 am, returns at 5:30 pm.
As far as my cervical spine goes, I found a report in my neuro records from Jan 2012, it has to be from a CT since I had the SCS's then. The impression states: "Multilevel degenerative disc disease with mild canal stenosis and mild to moderate left neuroforaminal narrowing from C3-C7." My facial issues are on the right side.
And thanks, we are pretty much over our colds. Just lingering, irritating mess that usually hangs on.
Thanks again both of you for responding...having a bit of a rough day today!
Nanc
