Oh Dear Lord I am so very sorry. This seems to an an unfortunate trend. I am beyond perplexed as to why so many dr assume this posture? Is part of it bc the other NM diseases they see like ALS skew their whole perception of things? I had a very similar exp at Johns Hopkins and I definitely wanted to scream, punch and hit?!!!

Guess where I am going mid April? You guessed it. Now I am rethinking things.

Hang in there!