Abby, No one is saying to do this or that. She's a newbie, and I believe we are all expressing caution AND saying to talk to her doctors. The problem is that her doctors are not talking to each other and giving her any guidance.

Of course all of us would trust our instincts and work out what is best with our doctors.

I don't think what you're saying is really contradicting what we are, only fine tuning a few things. And I'm pretty sure we could find studies on both sides of any stance, no matter the issue, which is beyond frustrating when a person wants to do what's best for their child!

And who among us would not like to be more active?! The exception to her situation is that she is not on drugs yet! Being sedentary isn't a great way to go, but neither is an MG crisis.

Annie