Quote:
Originally Posted by Lynn
And I don't mean the yummy kind that comes after dinner with witty (or tipsy) conversation and nice cheese with crackers.
I had infusion # ???? (in my fifth year now) and my veins are going on strike. My beautiful nurses - one of whom has MS, and the other who is a super-gentle and experienced oncology/chemotherapy nurse have suggested I get a port put in after three unsuccessful attempts today to cannulate me (finally got it in on my cubital fossa - which I don't like)
Not sure how I feel about this - in Australia, they don't test the titre level for JC+ - you are just positive or negative (I am +). If I knew my titre level, I would have a better idea of how long I am prepared to risk Ty.
Does anyone else have a port? If so, what was it for, what was your experience, and did it make using Ty better?
Thanks
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Lynn, I've been on Ty for almost 7 years. The infusion nurse asked recently if I would consider a port. I really would prefer not to since I know one must be so careful not to get it infected or clogged.
What have you decided about the port????
BTW, I'm having my infusion drawn out to 1 1/2 to 2 hours and I really am having less side effects. It's been great!!!!!!!!!!!!!!!
I hope all are doing well
hugs,
shayna