Quote:
Originally Posted by jusf
just thought I'd give an update. Neuro didn't receive the first referral so a 2nd was sent, which they got 4 weeks after 1st was sent. I've now been told it'll be early June before I'm seen :-( and that'll be by the general neuro consultant again - I had hoped they'd be sensible and pass me on to the headache and migraine consultant they have there, as there's clearly more specialised knowledge needed. Meanwhile, having had 9 episodes in each of Jan and Feb, I've had 9 episodes in March with 6 days left to go - they just keep getting more and more frequent slowly but surely. Last year it took me till the middle of September to have this many episodes from January! It's worrying.
|
Thank you for the update. I'm sorry this is taking so long and has been such a run-around.
I know it's not what you want to hear but it can take years to get a diagnosis, especially if you have something rare or are presenting in an unusual way.
Just remember to document everything, keep copies of all tests and doctors visits and go where you need to for support, whether that's here or to a close friend or family member.
Hang in there!