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Old 03-27-2014, 02:30 PM
twitchyfirefly twitchyfirefly is offline
Junior Member
 
Join Date: Jul 2010
Posts: 49
10 yr Member
twitchyfirefly twitchyfirefly is offline
Junior Member
 
Join Date: Jul 2010
Posts: 49
10 yr Member
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Between your initial symptom of trouble tearing open oatmeal packets and the weakness in thumb extension years later, were your symptoms stable, or did they progress? Did you have any sensory symptoms early on?
Actually, the very first thing I noticed was a slight tremor in my left hand. After that I had the grip weakness in my left hand and also fasciculations that started in my upper left quadrant and have since spread throughout pretty much everywhere except my head. I can't remember which of those came first.

I would not characterize my lack of extension in my thumb as "weakness". Trying to lift my thumb is like trying to levitate the dining room table. I feel like a vital line of communication has been completely severed. Despite that, they have never been able to find a true conduction block in me, which is a classical hallmark of MMN, though not strictly required for diagnosis. And since then I have lost extension three more fingers on my left hand.

As for sensory symptoms, those came later. Right now the tip of my left index finger is numb, some of my thumb is numb (which could be from spending too many months in a splint, trying to treat De Quervains tenosynovitis), and I have that ghost-stocking feeling on my left ankle which has been spreading.

One always has to keep in mind that there is a lot of variability in symptoms. This makes comparisons difficult. Most people with a current MMN diagnosis have at some point been told they have ALS.
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