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Old 03-27-2014, 09:00 PM
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
Heart

Eve, Doubt isn't fun to live with. Sometimes doctors are more hesitant in the "black and white" notes than they are in person. It's a legal thing.

Has anyone checked your IgG levels? There are four "subclasses" of that immunoglobulin: IgG1, IgG2, IgG3, and IgG4. If you have a deficiency of all of some of those levels, your antibody test can be falsely negative. They use different immunoglobulins for different antibody tests. For example, they use IgA for the celiac antibody test.

Have you ever seen a pulmonologist or had MIP and MEP done? It might help to have more "proof" for your neuro.

Many doctors have a tough time with a lack of so-called "evidence." That's why MG is a clinical diagnosis backed up with tests. A negative test doesn't prove a positive! In other words, a negative test doesn't prove you don't or do have MG.

You get weaker the more you do and better when you rest, right? Trust in that. Trust your instincts!

I hope the SFEMG and your doctoring go well!

Annie
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