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Old 03-28-2014, 07:30 AM
Susanne C. Susanne C. is offline
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Join Date: Jul 2011
Location: Mid-Atlantic coast
Posts: 721
10 yr Member
Susanne C. Susanne C. is offline
Member
 
Join Date: Jul 2011
Location: Mid-Atlantic coast
Posts: 721
10 yr Member
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I have hereditary neuropathy, and it has progressed to my hips and above the elbows. I have both small and large fiber neuropathies, both fairly advanced with extensive and visible muscle loss. Motor symptoms were evident in childhood, clumsiness, odd, high stepping gait, high arches, inability to run, etc.. Sensory symptoms started around 30 with numb toes. I am 52, walk with a cane, and cannot move my toes, can barely move my ankles. Mine is axonal, in that the axons are affected first, CMT type 2, we did not test for subtype.
If your father had this, I think you have your answer. I did not have access to my father's medical history but it does seem likely based on what little I know- half sister in leg braces, self medicating with alcohol, inability to get out of a chair unassisted, etc.

Last edited by Susanne C.; 03-28-2014 at 08:18 AM. Reason: Typos
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