Senior Member
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Join Date: Sep 2013
Posts: 1,500
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Senior Member
Join Date: Sep 2013
Posts: 1,500
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Hi Toe, I'm sorry you have rsd and at such a young age no less. I've had it for over three years and I'm 49. Mine started in wrist after I broke it and had a closed reduction. My symptoms were immobility of wrist and fingers and shoulder. Dark red to purple color on my hand to my wrist. You could see a line where the rsd stopped on my wrist. I had severe internal pain, but the sensitivity to touch and burning pain came a few years later. As did the sweating. I've had eight nerveblocks, three surgeries and lost a tooth, cracked a couple more and lost some hair since then. I have had spread to all my limbs and stomach and mouth. I am in constant pain and have gotten fibromyalgia a few years later as well. I lost my gallbladder and stones a few days ago and had a oopherctomy and hysterectomy a few years ago. My ortho dr sent me three months after diaganosed to a pm dr. He started me on the nerveblocks and neuronten and continuted the percocet that the ortho dr prescribed to me. I went to pt three times a week for six months and a neurologist who had me on high does of prednisone for two months. I also see a psychiatrist every three months. He prescribes xanax and zoloft for me. I tried cymbalta and felt extrememly depressed from it so I went back on xananx which helps a little with my panic attacks. I've never treid lyrica though. The neurontin and percs and xananx and zoloft and vit d for osteopnia and osptearthiritis I have now in my hips to help to avoid thin bones, because breaking bones can cause possible spread of rsd. The pills I take every day to help keep my rsd pain under control helps me to function a little and get out of bed each day. It has taken a toll on my stomach though. I stopped taking Advil because that was really irritating my stomach. I'm hoping I can cut back on the percs once the weather warms up. Cold and rsd don't mix well. Everything I tried helped a little to keep rsd pain and spread under control, but this past year I have been told by some of my drs that they suspect rsd spread in my arms and feet. Excessive dark hair growth and redness and swelling, burning and pain are the symptms and lack of movment are the sysmptom. atrophy. You caught yours early and I will pray you go into remission. My pm dr has seen it happen to some and has seen spread in others. There is no ryhym or reason. Keep doing pt but make sure they don't ice your arm after each session. Ice is Bad for Rsd. Prednisone helped me more than nerve blcks to get some movement back. But can be take only short term. My pm want me to try scs but my neruologist ssaid no for fear of risk of infection. I also have scoliosis, so it scared me too mcuh so I didn't do it. It's only good for the first two years anyway and I had two surgeries at the time done so was in no shape anyway. I think having a good team of drs, the support of family and friends like the friends on this forum and learning as much as you can about rsd like on the internet (rsd hope is a good one), and never giving up and taking one day at a time is the key to surviving and hopefully going into remission. I have found a pain psycholoigist to help cope with rsd. I think it's great that you found one. Water therapy slow paced is great too. I will pray that you go into remission and that you can resume the life you had. But no matter what happen, you are never alone, as long as you have a good support system. The people on this forum are the best and are always there for you if you need them. I know because they are always there when I need them. You will find that you are stronger than you think you are in your journey with rsd and you will be okay because you always have a friend me and the others here on this forum. Take care my friend. With love,Renee. PS sorry about typos, my fingers are very stiff today and my brain is fuzzy due to lack of sleep.
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RSD ME .
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