View Single Post
Old 03-28-2014, 02:48 PM
justjane37 justjane37 is offline
Junior Member
 
Join Date: Sep 2013
Location: Ontario, Canada
Posts: 85
10 yr Member
justjane37 justjane37 is offline
Junior Member
 
Join Date: Sep 2013
Location: Ontario, Canada
Posts: 85
10 yr Member
Default

Sorry you are dealing with this.

I have Atypical Trigeminal Neuralgia that started out as tooth pain last year. Yes it comes and goes. It can even go into remission. If your pain disappears completely there isn't anything to treat at the moment. Likely, it will stay with you, come back and it can get worse.

So, yes see a neurologist. You need to have an MRI to rule out other causes such as MS or a tumour. And you need to be put on medication. TN typically does NOT respond to any type of pain reliever and is mostly diagnosed when a nerve medication works to relieve the pain. Typical medications to start are Tegretol or Neurontin. For Type 2 or Atypical TN (which it sounds like you have) often Amitriptyline or Lyrica work as well

Quote:
Originally Posted by VickiB75 View Post
Hi, I have just been told I have TN. It started in December when I had very bad pain in my left upper teeth for a week. I went to the dentist who did an x-ray and said there was nothing wrong, must be a sinus infection and gave me antibiotics. I did not take the antibiotics as the pain went away by itself. Then on 16th March the pain came back. I recognised it straight away so this time I went to the doctor who put me on antibiotics for a sinus infection, she also gave me tramadol and ibruprofen which did nothing for the pain. After seven days on the antibiotics with no difference I was sent to ENT who put a camera in my nose and said my sinus's were clear and that there was no reason for the pain. They told me it was TN and to go see a neurologist. My doctor is trying to get me an appointment next week as I have lost 8lbs in weight due to not being able to eat.
After that long winded history, my question is, the pain seems to have eased. I can now drink luke warm drinks and eat, it's only very hot or very cold that triggers the pain now. I know very little about this. Do you get bad days and good days? Do you get periods of relief from it? Should I still go and see the neurologist if it seems like it is getting better on it's own?
Any advice would be appreciated, thank you
justjane37 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
VickiB75 (03-29-2014), Vowel Lady (03-28-2014)