That is the very reason why this group is so amazing! It always has been and will continue to be! There are so many of us and we sure know a lot more about going thru living thru and trying to breath thru all this pain than many Dr's do! Keep going strong try to hang in there during the worst times ever and maybe just maybe at the end there will be hope for all of us living with this syndrome( Love to All Breezy55~~~