Quote:
Originally Posted by Ginger123
Hello Anki, I'm so sorry to hear that you received this diagnosis because I can imagine the pain and other symptoms that you may have had that brought you to seek medical assistance. I had a large colloid cyst removed over fourteen years ago after fifteen years of misdiagnosis and neglect. Because of the size of mine and the amount of hydrocephalus that I had, my surgeon chose to do an open craniotomy, too, as that is the route that he was most skilled at doing. He got the whole cyst out, but the hydrocephalus could not be relieved for me because the cyst had been there too long and I needed to have shunts put in my head. Unfortunately, I did not have a very good post surgery experience as I suffered a stroke during surgery because, I'm told, the general surgeon assisting my neurosurgeon retracted to roughly and caused a hemorrhagic stroke. That being said, make sure you know your surgical team. Everyone doing your surgery should be certified to do neurosurgery. In other words, the surgeon assisting your neurosurgeon should be another neurosurgeon. My mother had her surgery for the same thing at a different hospital and with a different surgeon and had a much better outcome.
Take good care and I hope all turns out well for you.  |
Thank you so much Ginger for your post! I was hoping that someone like you would write. The doctor that will do the endoscopic is the best in Toronto and some say in Canada. However, not sure who will assist and what control do I have over that. I'm grateful that he accepted me as his patient. How about your life during the years after the surgery, your memory and the headaches? Were you able to return to work, and after how long? Sorry, too many questions...thank you so much again!
PS the fact that your mother had the same thing is super important as well, as I have a daughter, so she should always be aware of this.