The Neurolagist wanted to do a DNA test, I was and still are a cash patient, they wanted $3,000 for the test, but he also said there was no known cure, so I thought it would be throwing money away. I had already had symptoms for 16 years, so I knew I had some sort of PN. It makes more sense today to get the test, as more is known about the different types of PN, so it might be worthwhile. Probably is cheaper for the test now, too.
My father had the burning pain in his feet, he told me, at one point it felt like a fuse burning up his legs, he lost feeling in both legs. I guess this would be considered large fiber involvement. I am getting a progression of pain up my legs to the knee, but not numbness. He also had widespread muscle pain, similar to FMS or maybe MFS. The tendons were like ropes and the muscles were always constricted. He used to solicite back rubs from us kids, as far back as I remember. I have the same muscle tension in almost every muscle. I was thinking FMS, but I have not had many headaches, and my GI track is fine, it is mostly just e tight ropey tendons and muscles with big knots, that do not untie. In fact I had surgery on both my shoulders to surgically remove the tendon knots on my bicep tendons. They were rubbing on the bone and dislocating my tendons when I lifted my arms. Then the last procedure was infected with staph during surgery, so I had to have two more surgeries and gallons of antibiotic IV's, but that is mother story...
That is why I was surprised my Rhumitologist dismissed the family history with "I don't know your father" I guess meaning I made it all up. She says it is just muscle pain caused by wear and tear, even though it has been like this since I was a teenager, many many years ago...
I am wondering if the muscle involvement was caused by small fiber neuropathy?
Sorry for the long winded answer.