I had read the muscle tightness somewhere in my search, but you are probably right... My PN has been only sensory, I have exceptional balance, and full use of my limbs, I just have the pain. Well, I do get some temporary numbness in my hands, arms and legs, but it is susually after one of those afternoon naps...
I did a lot of surfing in cold water when I was younger, my fingers and toes would be frozen open after several hours in the ocean, I wonder if this contributed to my neuropathy? I have always been sensitive to vibrations form power tools, it would cause pain and itching of my hands similar to when I would thaw them out after surfing.
Sounds like I should follow this up with another Nuerologist, and see what the cause. It is a little frustrating as none of my choices actually have cures or treatment options, except pain masking drugs. After all these years, I am pretty sure it is not reversible at this stage of the game.
It sounds like my father had both small and large fiber involvement, with the legs going numb.
Thanks for the input!