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Originally Posted by Perciphone
I apologize for not first familiarizing myself with the site and messages but I read this post & thought I'd faint. I'm now 58 years old. I have severe generalized MG & awful bulbar symptoms. I finally started going to the best neurology dept. & University Hosp in NC two years ago. I adore my neurologist & everyone in neurology dept. & hospital. I've always known I had MG from first few symptoms at 34 years old and on. For years, I have been complaining of ROARING in my ears when I BLINK & SWALLOW, esp. when I'm very weak & I feel like my entire head is imploding & pressure in my ears is severe. Not Tinnitus but roaring! All I ever hear is that it's not a symptom of MG (which is why it goes away after plasmapheresis  Now I'll familiarize myself with the site and threads/posts. I'll check back in a day or so because I'm really not doing well. But I was stunned when I saw the ear/hearing posting. Sometimes I feel like I just want to put a needle through it to relieve the press. My now compatriots! |
I, also, am glad to hear that other folks are experiencing these symptoms. I've had tinnitus for several years now. I should also mention that many years ago, before I was diagnosed with hypothyroidism, I also had tinnitus which vanished with successful treatment for underactive thyroid. Now it's back in exactly the same form it took back when. I only have it in one ear for the most part, but when my electrolytes get out of whack I get it in both ears. And I do get intense pressure from time to time, likely when I have a cold or when seasonal allergies are kicking in. It can make you feel like you're losing your mind! I've always treated it as though it was the least of my worries (exhaustion is right up front, all the time), but I have worried that it'll eventually contribute to deafness. Anyone have a comment on that? Two members of my family were/are profoundly deaf.