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Old 03-30-2014, 02:04 PM
Jon_sparky Jon_sparky is offline
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Join Date: Jul 2013
Posts: 145
10 yr Member
Jon_sparky Jon_sparky is offline
Member
 
Join Date: Jul 2013
Posts: 145
10 yr Member
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Quote:
Originally Posted by uglogirl View Post
Good Morning,

I just received my EMG report back and was diagnosed with a Sensorimotor polyneuropathy, axon loss in type, severe in degree electrically with regards too the sensory fibers of the lower extremities and moderate in degree electrically with regards to the motor fibers of the lower extremities.

How do you deal with the symptoms? Are you still working? How does it affect your daily life? What Vitamins have you had success with daily.

Are you on Gabapentin or Lyrica?

Does it improve over time?

Has it gotten worse over time?

Mine is Diabetic related what is the cause of your Poly neuropathy.

Do you go for physical therapy?

This is all new to me and I would appreciate any enlightment you could share with me.
Hi,
I have had this for close to 30 years. When I was first diagnosed the doctor first thought I was just making up the illness to get out of my situation at the time, when I convinced him that I really did have PN pain, he prescribed a multivitamin which was a total joke. So I went on silently suffering for another 16 years, then I went to a Nuerologist who diagnosed me as hereditary Neurapathy, this was 2003 before Lyrica was invented. I was told there was no cure, so I just went on with my life and pain. A foot doctor told me about Lyrica in 2007, I had just researched it on Google before going in to see him, I read about suicidal tendencies as some of the complaints, the foot doctor who happened to be helping with the Lyrica study at the time, knew nothing of this...
Fast forward to present day, the Ruemotolgist thinks it is caused by Pre-diabetic insulin resistance. Gabapentin had horrible side effects, brain fog and tachycardia, so I was taken off it after a month. This is the first line of drugs they will offer, Gabapentin, if it works for you is a better choice of the drugs, it is just hit and miss, some do better then others. It is in the same class as Lyrica, so if you have problems with Gabapentin, I was told the Lyrica would also cause problems. This is a fairly safe drug, as it is not processed through the liver, like some of the other stronger drugs.
As far as I am concerned Physical therapy would have no effect on Neurapathy, unless it is caused by a physiological problem. Poly Neurapathy is neurological in nature. Now I did see one study in Oregon where they found that a abnormality with the vertibrea of the neck was causing a pinched spinal cord, reducing the diameter when the head was tilted back. They found that when a additional MRI was done with the neck tilted bak it revealed the problem. They have claimed to have been able to help 80% of the patients with PT excersises.
I will try to find the info on this.
Hope this is helpful!
Jon
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