Hi Lara,

Thank you for your reply. In addition to multiple standard EEG's, we have done 2 24-hour EEG's, both inpatient and outpatient, and neither showed any signs of seizure activity.

He currently takes Depakote, Onfi, Clonidine and Prevacid. I will do some research as to any possible connections with catatonia. Catatonia has been considered and he was put on Ativan but the dose may have not been high enough.

In the past 2 weeks he has also had episodes of falling asleep during the day which is totally unheard of for him. We saw his neurologist on Friday and she is considering the possibility of partial complex seizures and/or narcolepsy. She is consulting with my son's psychiatrist and a sleep specialist to decide on a plan.

It is all so confusing and complicated. My heart breaks for him and I need to figure this out. He is begging for someone to figure out what is happening to him and the doctors seem just as confused as me. It's so frustrating. Any further advice would be greatly appreciated.

Thank you,

Wendy