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Old 03-31-2014, 03:42 PM
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Location: Ohio
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Join Date: Jan 2014
Location: Ohio
Posts: 195
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Quote:
Originally Posted by Jon_sparky View Post
Hi,
I have had this for close to 30 years. When I was first diagnosed the doctor first thought I was just making up the illness to get out of my situation at the time, when I convinced him that I really did have PN pain, he prescribed a multivitamin which was a total joke. So I went on silently suffering for another 16 years, then I went to a Nuerologist who diagnosed me as hereditary Neurapathy, this was 2003 before Lyrica was invented. I was told there was no cure, so I just went on with my life and pain. A foot doctor told me about Lyrica in 2007, I had just researched it on Google before going in to see him, I read about suicidal tendencies as some of the complaints, the foot doctor who happened to be helping with the Lyrica study at the time, knew nothing of this...
Fast forward to present day, the Ruemotolgist thinks it is caused by Pre-diabetic insulin resistance. Gabapentin had horrible side effects, brain fog and tachycardia, so I was taken off it after a month. This is the first line of drugs they will offer, Gabapentin, if it works for you is a better choice of the drugs, it is just hit and miss, some do better then others. It is in the same class as Lyrica, so if you have problems with Gabapentin, I was told the Lyrica would also cause problems. This is a fairly safe drug, as it is not processed through the liver, like some of the other stronger drugs.
As far as I am concerned Physical therapy would have no effect on Neurapathy, unless it is caused by a physiological problem. Poly Neurapathy is neurological in nature. Now I did see one study in Oregon where they found that a abnormality with the vertibrea of the neck was causing a pinched spinal cord, reducing the diameter when the head was tilted back. They found that when a additional MRI was done with the neck tilted bak it revealed the problem. They have claimed to have been able to help 80% of the patients with PT excersises.
I will try to find the info on this.
Hope this is helpful!
Jon
Hi Jon I just had to share this with you . .. My husband was diagnosed with myelodysplasia (low blood platelets) and was told by his specialist nothing could be done about it.

I made lots of spinach with garlic plus I make him a protein drink everyday with spinach, almond milk, berries (strawberry/blueberries) banana, and Shaklee Protein mix. His platelets when his specialist told him nothing to be done were 71,000 per that was five years ago today his platelet are almost normal being at 123,00 per normal I believe is 150,000 plus,

And we pay these guys the big bucks.
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