Hello Vrae,

Gosh that must have been hard. The reality it brings when someone else not only see's our deterioration but is brave enough to verbalize it is alarming. I know it is hard to see it right now but this is a good thing for the both of you. Just like with our husbands it is important to 'check in' with our children and friends to see how they are doing. Asking them how the condition is affecting them (and being open to hear what could be painful answers)? They might need help coping and also figuring out ways where they might be able to help. Often our families and friends feel just as hopeless as we do, but when they can help in even a small way this can really help.

I am so sorry your arms have gotten so much worse. Have you thought about perhaps switching gears on where they have been doing the injections and maybe having more focused and aggressive therapy for your arms? Since you have long standing CRPS but the arms are at least a newer area of pain this might be easier to get under control? Have you tried placing your lidoderm patches on your upper back and shoulder area for pain control? What about the medicated compound creams have you been able to try any of those?

Sure wish there were easy answers!