Hi Nanc, I am fairly new here also and am up for both neuros and you have. You didn't mention anything going wrong with the cervical one. Is everything ok with that neurotransmitter? It seems as the both of you have had problems with the thoracic one and I have read or others having the same problems also so I am leaning towards the infusion pump instead because they said I am a likely candidate for that also. Any comment
Hugs to all and I hope your days have tolerable pain.
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Originally Posted by Nanc
Hi Bri, welcome to NT. Sorry you have to deal with RSD/CRPS.
I have had RSD for a little more than 23 years. It started in my face and around 7 years ago it started to spread with new injuries. I now have it through most of my body. With so many failed treatments, I finally got two SCS's (cervical and thoracic) implanted in 2011. I had a revision to the thoracic SCS 5 months after implant, leads changed out for paddle leads and moved the battery. They were awesome. They allowed me to get through another 1 1/2 years of work. After that 1 1/2 years, the effectiveness began to wear off. The thoracic paddle migrated and that relocated battery was twisted and hurting. My neurosurgeon thought it best to remove them then do another revision, so I had both SCS's removed this past January.
Have you had yours reprogramed? A month is pretty soon to say it will not help. Plus you are still recuperating from the surgery. It took me MANY long programming sessions to get the right coverage and stimulation.
There are quite a few on NT that have had success with these helping thier RSD pain. I hope yours starts helping your pain soon!
Nanc
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