Just wanted to share some updates.. I spoke to an expert who reviewed my MRI and interviewed me cleverly about my symptoms. I was told that I am a text book Tarlov cyst case and a prime candidate for an operation, which potentially could relieve almost all of my symptoms - perhaps not the dizziness. I am now waiting for the operation to be arranged. Mixed feelings about it, it's nice to be taken seriously, finally. But I can't believe it had to take 15 years when I'm apparently a textbook case. Two of the cysts (symmetrical in S2) have reached the size of golf balls and have eroded the bone away completely at their position. The cysts in S1 are smaller. So I'm scared and excited and angry and bitter and cautiously hopeful.