Originally Posted by cdwall

I'd certainly like to try some type of ketamine infusion but I'm having trouble getting that to happen. It would have been my first choice, cut to the chase treatment. At the pain specialist they wanted to do other things first like the nerve blocks and maybe SCS. However, if I can't have a nerve block, I'm not sure how many of these other procedures I can have either. I'm kind of inbetween old plan and new plan now.

It took nearly a year to get a diagnosis and it's now just over a year that I started having symptoms. I've been to 11 specialists. I'm pretty frustrated at how slowly everything has gone.

Yet, in many ways, as this disease goes, I feel fortunate that nobody ever tried to say it was all in my head or blow me off, because I had prominent physical signs -- mainly the ever worsening swelling in my right leg, now all the way up to my waist. In fact one specialist didn't think it could be RSD/CPRS because my leg was way too swollen. Another big part of the problem with diagnosis was I had no known precipitating event. For a long time they were looking for cancer, like a lymphoma. But doctors were always trying to get to the real root of the problem and I realize everybody who has this isn't or wasn't that fortunate. It's just taking too long for me to get to a point where I feel I'm actually being treated, and treated successfully. Reading these various forums I still feel lucky overall though.

So the answer is I hope eventually something will be done. But things are still in progress.

I hope you are doing better and getting some rest.