I am working on it. I just spoke to a lady whose daughter had this, she got it while pregnant and the spent the money for a phone consult with dr kohen, I think thats his name, the guy in the link here in the old thread.

She is making some calls to her doctors to see if she can find one for me close to me.

I felt no comfort talking to her, it sounds as if her daughter went through a hellish ordeal before getting it somewhat controllable.

Im trying to stay calm as stress makes it worse but with everything I find out it only gets worse. Her daughters story was like a horror story.

So, now I wait and see what if any dr she can find, if none, then I start on my own.

I cant remove my left foot from water at all and its swollen so huge just like those pictures.