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Old 04-03-2014, 04:09 AM
Llynnyia Llynnyia is offline
Junior Member
 
Join Date: Mar 2014
Location: California
Posts: 77
10 yr Member
Llynnyia Llynnyia is offline
Junior Member
 
Join Date: Mar 2014
Location: California
Posts: 77
10 yr Member
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Quote:
Originally Posted by RSD RENEE View Post
I emailed the CRPS Institute in Manhattan and hope they will see me. I don't know if they accept people who have had rsd for over three years, but I figure it's worth a try. I don't feel like my drs are trying to help me get better. They are just going through the motions and I want to get better. I'll keep you filled in in case you're interested. I live in NJ so it's not too far a drive and my husband can drive me. My immune system is crumbling and I read on the CRPS Inst of Manhattan site that they may see a link between rsd and another autoimmune disorder and something they are using to help treat it. Anyway, I hope they can help. Have a good night.
I hope they do accept you and it helps.

That is funny that you brought that up today ... when I was 10 or so I was diagnosed with jr.rhumitiod arthritis an autoimmune disorder. I have seen the papers I did have it, by 16 it went away mysteriously no clue why. Why I was amused was because my new doctor called today to ask me about it! I guess she missed the part in my records where I was retested after the accident it was one of the very first things we ruled out .

I wish something was closer to me for an rsd specialist the closest is San Diego I think around 6 hour drive for me.
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"Thanks for this!" says:
Hana (04-04-2014), RSD ME (04-06-2014)