I'm glad you've tried to get in there Renee, hopefully they have a larger repository of wisdom than your current docs

and can actually help a bit more.
There is a growing number of scientists convinced that CRPS has some kind of immuno-system malfunction going on. Why do some people recover quickly after initial onset, and others have it set in for life? There must be a reason. This thinking is the reason for the IVig trials (intra-venous immuno-globulin), and others, to try to boost the immune system in an effort to have your body actually start to heal itself. It's still theoretical for the most part, but that's why the trials are being done.
Good luck - I hope you get a speedy and positive response! If I were near the place, I'd be trying for it too...
Let us know how you get on.
Bram.