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Originally Posted by RSD RENEE
I emailed the CRPS Institute in Manhattan and hope they will see me. I don't know if they accept people who have had rsd for over three years, but I figure it's worth a try. I don't feel like my drs are trying to help me get better. They are just going through the motions and I want to get better. I'll keep you filled in in case you're interested. I live in NJ so it's not too far a drive and my husband can drive me. My immune system is crumbling and I read on the CRPS Inst of Manhattan site that they may see a link between rsd and another autoimmune disorder and something they are using to help treat it. Anyway, I hope they can help. Have a good night.
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I called and was told they do not accept my insurance; fees would all be applied to my out of network benefits and the estimated cost for an initial visit was more than $1,000. Most importantly, I'm not sure this place is legit. It appears to be an umbrella organization for a spine center!! That's what I discovered at least. The doctors themselves may be good, but how much do they really know CRPS.
You will be MUCH better off finding a quality pain management specialist at a major hospital like HSS and St. Lukes Roosevelt where they have a dedicated team treating CRPS patients and follow/offer CRPS treatments.