Quote:
Originally Posted by IH8PN
Thanks Lewie, I talked with my neuro the other day. He doesn't seem aware of the full lists of tests. I told him I'd be ok with waiting for the nerve conduction study before preceding with further testing
I'm taking most of the common supplements. R-lipoic, Acetyl-Carnitine, Benfotaimine, Coq10, D3, B12, B complex. a few others I can't think of off the top of my head, along with gabapentin and nortryptiline.
I can't say I've improved, more like my symptoms are changing. Burning, aching, freezing, sensitive skin, broken toe feeling, stabbing. It all seems to vary day to day. Some are better than others.
Hope you get some relief. My feet are the worst. Can't walk or stand more than a few minutes which is really life changing. Hang in there!
|
I take all my B vitamins seperate than a b complex to avoid the B6. Something to think about. I also found I didn't get along with very much benfo, B5 and Acetyl-carnitine. All made my pain worse. My pain is different every day. Its a crap shoot to what its going to be like or feel like each day. I get relief from R-lipoic but it started making my heart go weird. I noticed your not taking magnesium. That is the number one thing that helps me. I take Mag64, the generic version of slomag. I HIGHLY recommend it. I was taking 4 a day but had to taper off to 3 cause it was also messing with my heart. If it didn't bother my heart I would eat 6 a day and would propably be pain free. Also I take all my pills at least 30 minutes to an hour apart to see how I feel after each one. That narrowed them down for me.