Hi. My symptoms started to accelerate last August to the point that I couldn't walk without a cane or assistance. I could barely talk and swallowing became an issue. In mid November, I was admitted to the hospital with small bowel obstruction. Upon admission, I informed my dr's that I had a tentative dx of MG.
They rolled their eyes. During surgery, I quit breathing and they became instant believers! They started me on mestinon , 60mg 3xdaily. 30mg prednisone and 1 round of IVIG. Over the past few months, meds have been reduced to mestinon, 60mg 3xdaily. My neuromuscular dr wants me to try mestinon timespan feeling I'll do better. Also, he wants me to resume prednisone, but just 10mg daily to start.
Mestinon has addressed a few of my symptoms but not all.
I still have a problem with dbl vision with phys activity. Talking and swallowing are still an issue, however, I do better immediately after taking med.
Just today I've developed cramping and a stabbing pain in my left hand.
I HATE MG and the dr tells me I have a mild case. I can't imagine how others cope that have serious MG
Thanks so much for responding and sharing,
Jan