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Old 04-04-2014, 04:59 PM
tos8 tos8 is offline
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Join Date: Sep 2009
Posts: 286
15 yr Member
tos8 tos8 is offline
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Join Date: Sep 2009
Posts: 286
15 yr Member
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Quote:
Originally Posted by RSD RENEE View Post
Thanks Nanc, Bram, LLynnia and Tos for your caring thoughts.
Nanc, Thanks for reading my post and always being such a good friend. You are always so kind and caring.
Llynnia, I was tested for rhuematoid arthritis because it runs in my family, but was told I don't have it. I have fibromyalgia, but that's not considered an auto-immune disorder. I don't think I have any other auto-immune disorder beside rsd. I think rsd is an auto-immune disorder because it is ruining my immune system. I glad that you don't have rheumatoid either.
Bram, You are so darn smart. You should be a doctor, seriously. You knew exactly what I was trying to say about the immune system and IVig trials. That's what this institute in Manhattan is exploring. If they let me, I will consider being a part of this trial. Thank you for explaining to me and everyone what this institute is trying to research. I'm not very good with words and not as smart as you. I really appreciate you explaining what I was trying to say.
And Tos, I hope that your visit to PA will be a good one. I hope they can help you. If you would let me know how it goes, maybe I'll check them out too. PA and DC aren't that far from me either. I first thought the Manhattan clinic would be too far, but at this point two hours is worth it if they can help make me feel better.
I will let you all know how it goes. So far, I have not heard back from them yet. I hope I hear from them and soon. Thanks again for your caring and support. I wish you all a pain free and peaceful night.

Will do! Im hoping to go to PA and try the IVIG aswell, as they also have the trials going on. If im not a candidate then I want to look at all options, which would of course include ketamine and I def want to talk to them about what Tessa is trying. Im not looking for a "temporary" solution, im looking for a more "permanent" one and Tessa so far has that down! I know all of this is experimental, but gotta try something and im looking for the something that's gonna last longer. Ive been in pain long enough and im tired of suffering. There more humane to animals then they are to people.
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"Thanks for this!" says:
eevo61 (04-09-2014), RSD ME (04-04-2014)