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Old 04-04-2014, 08:39 PM
hopeful hopeful is offline
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Join Date: Aug 2009
Posts: 914
15 yr Member
hopeful hopeful is offline
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Join Date: Aug 2009
Posts: 914
15 yr Member
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Quote:
Originally Posted by cat1234 View Post
Thank you so, so much Hopeful. I was not aware of the connection either but had a suspicion after reading about how alcohol neuropathy often stems from nutritional deficiencies. And yes, I tended to drink wine pretty much every night and it would suppress my appetite making me eat even less. Then when I decided to quit drinking due to the neuropathy symptoms, I still ate the same amount and lost even more weight. On top of it all, I contracted a nasty parasite a few years ago and plummeted to the 87 pounds I have held onto for this long.

The fertility specialists did bring it up, but did not go into depth. I really think in our society of ultra thin being the optimal, low weight may not be seen as unhealthy until it is a hospitalization issue. Or as you said, doctors are just reluctant to discuss it. They ran all kinds of tests anyway and nothing came back positive so my official diagnosis was amenorrhea. Thankfully, I was still able to have children with a series of high dosage FSH/HCG injections. I have two 9 year old boys and a 4 year old boy.

Upon your advice and others, I did see my GP this week and she said gaining weight to a normal BMI would be beneficial. Since she is a GP, I believe that neuropathy is beyond her family practice. Again, there was not a huge concern....she did not say "you probably do have an eating disorder and we need to treat it." She did say I should discuss this with my neurologist. So I went in to see her as well and she seemed to think that while this may not have helped my situation, she is also reluctant to say it is the cause
I tend to agree with you all that there is a definite connection here and so I am also going to see an eating disorder specialist. Nothing else has seemed to help my condition so it is worth a try! While the pain in my hands and feet have not improved with the increased caloric intake, the dizziness and muscle weakness is definitely better! It has been about three weeks and I have definitely gained weight although it is actually hard work for me...

Are you still not able to workout? At times it makes me so exhausted and my feet hurt to the point that I can barely function the rest of the day-but it is also my sanity. How can something so good for you become bad????

Thanks again for all the thought you put into your responses to me and to everyone on this forum. Between you, Dr. Smith and Mrs. D you could start a medical facility of your own
Hi Cat,
I haven't been feeling real great so I haven't been on here in a while.

I'm really glad you are trying to gain some weight now. It great that some of the dizziness and muscle weakness is going away. That's terrible that you had a parasite too. I'm sure that made things a lot worse.

You may never know if your neuropathy was caused by the lack of nutrition. Does it really matter? Getting healthier is the most important thing. I know I may never know the reason for my neuropathy. I'd be lying, if I said sometimes I don't still search for the answers. But, most of the time I accept not knowing and concentrate on finding things that help to ease some of my pain.

I'm proud of you that you are going to see someone who works in eating disorders. I realize what a huge step this is. They would be the best source to tell you if you have a eating disorder.

I am still not able to work out but recently I stared PT to help build my muscle strength back. It leaves me in pain afterward but it subsides. Emotionally it makes me feel better.

No need to thank me. We all help one another here.

Hopeful
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"Thanks for this!" says:
cat1234 (04-06-2014)