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Old 04-05-2014, 06:18 AM
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cait24 cait24 is offline
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Join Date: Sep 2012
Location: Newtown, PA
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10 yr Member
cait24 cait24 is offline
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cait24's Avatar
 
Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
10 yr Member
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They did a bunch of gastro biopsies and blood test and ruled out gluten, crohns, and celiac. Gastro thinks it definitely autoimmume, waxes and wanes with MG, wanes with prednisones and cellcept. She was thinking lupus, sjorgens or sarcoidosis and sent me back to the rheumy. Rheumy ordered a dozen different antibody test, all negative. That was 6 month ago when I was feeling pretty good. The winter and snow shoveling sent me spiralling down - the fatgue, pain everywhere constantly and the rapid bowel transit returned. The new development was all the rashes and the return of the anemia. I have gotten rashes all my lfe on sun exposure. MY hemoglobin went from 14.5 to 12 in 1 month. Every time they try to wean me off pregnisone, the anemia returns. The rheumy returns from vacation on Monday and I will give him a call. I am concerned with the tests that look like they show renal involvement

keep well
kathie.
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