Quote:
Originally Posted by krow46
 Tessa, I got that coffee information from his site. I met and talked to Doctor Hooshmand 19 years ago and I am doing the four4"s. I went to a seminar in Maine and learned lots from him and what to expect from doctors that would not know about rsd. I was in bad shape 19 years ago and Doctor Hooshmand said he could definitely help me. The problem was we had to go to his hospital in Florida. We had no money. He has since retired but they still help RSD/CRPS patients.
The coffee thing coming from a neurologist that I have met and seen evidence of his knowledge and work and what information is in number one on that coffee list sold me but I still have a coffee every once in a while. It wasn't posted to "make" people stop, it is there to broaden the horizons of pain suffers. Information is not a command, it is subjective, we all see it different.
So Tessa I do follow the 4-4s and the 5cs. I am very pleased with the results as you are. I have not tried any other generic diets. I hope your day is going well and how are you doing today? Did it go as well as you hoped Tinkerbell? Go ahead-make my day. You sure made us laugh last night Tessa. I hope it is reciprocal . Hugs and compassion Tessa.  |
Krow46,
That is great that you had a chance to meet Dr. Hooshmand - pretty sure many of us are a wee bit jealous about that
. To bad that you weren't able to attend his treatment center. I totally understand the disappointment when location and finances impede the chance at treatment options. Shortly after my diagnosis I had an opportunity to be involved in a trial study for CRPS II but it was in Austria and finances and distance just weren't lining up for it to happen. I am grateful for the information that Dr. Hooshmand has made available on line including this topic.
I knew you posted it so that others could have the information and then do what they want with it. I've posted many of the same things.. knowledge is power and what works for one might not work for another whether it is caffeine intake, diet, injections, surgery etc., As I mentioned I haven't given up coffee totally but.. that isn't to say that I didn't test to see if that made a difference for me - I did and it didn't seem to make a big enough impact to make the change. Then again my passion for coffee might make my judgement less than optimal in that regard. I also look at things a little differently than some, with regard to things I've lost vs. what I am willing to give up. I've already lost so much of my life due to the affects of CRPS that I'm willing to give up even more if that gave me the possibility to regain some of what I've lost. Like you said so well - we all see things differently.
Besides Hooshmands eating recommendations there are other Neurological diseases that recommend a very similar way of eating. I've even read a few books that are geared toward coping with chronic pain through the holistic approach that also support the same. Anyway.. thanks for sharing your thoughts on it, I'm glad you have found it helpful as well. lol.. it was one of the easiest and least invasive things to try, so I did
Oh my day - Fantastic!! Not only have I been zooming around the house like 'tinkerbell' haha.. My husband and I had a Celebration of Life to attend where there was 75-100 people milling about. This would normally mean I was either in complete misery trying to tough it out or I would simply not go due to the increase pain it would create both equally frustrating as I'm sure you all well understand. To my surprise - pain was well controlled!! It did ramp up a bit but never to an intolerable level. I even ran across the parking lot as I was stashing some very special homemade cookies my neighbor made especially for me
hahaha seriously I was giggling the whole way.. it wasn't far but the point was I ran a few blissful steps with my epidural working like magic. Thanks for asking! And yes, I did laugh/smile right along with you and your wife - thanks for that.
I need to go back and re-read your story since I can't recall it from memory, so sorry you have been dealing with this for so long! With your many years of experience in fighting this what would you say has been the most helpful for you? Also do you have CRPS I or II?
T