Hey, Jenn ~
I have some of the same issues you are fighting but am further enough along to tell you the advice above is right on. I found it hit-or-miss but it's essentially the path I followed to where I am now.

I want to add though that my pain at first was so extreme (& pain killers make me psychotic) that I wasn't benefiting from the physical therapy. Acupuncture worked for me, and it relieved both the pain and the numbness nearly completely. It enabled me to pursue the physical and later occupational therapy & although I was forced to quit my job I am still able to care for myself and function well enough to do what's necessary to keep me going.

Get educated, and keep asking questions until you understand the answers. Make sure you know all your options and the possible consequences of each. It's not the easiest thing to deal with, but you can do this.

I got tested for Lyme Disease too and was negative. They recommend retesting though, because I guess it's pretty elusive.

Take care.
Roads