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Old 04-06-2014, 04:09 AM
Brambledog Brambledog is offline
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Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
Brambledog Brambledog is offline
Senior Member
 
Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
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Thanks Kim.

Oh dear. I made the mistake of looking at a few comments on the bottom of the page.....one of the idiots said that if it can be treated by physio, painkillers and counselling then that means its at least partly psychological, and that she should start thinking of her poor son, get a grip and get a life...and get back to work. And that plemty of people have pain and dont whine on about it. That she had likened it to labour pains and shouldnt be so stupid. Omg I was a bit tempted to sign up just to comment!!!

I find even the expert docs comments a but vague and easily misinterpreted. I wish these docs would understand that public perception is everything with a rare condition, and that they need to be very precise about what they say. They said about 70% of sufferers being cured, and mentioned there's a problem with speed of diagnosis, but they didn't explicitly say that the vast majority of people diagnosed with CRPS who get better do so within the first few months, and that once the sufferer has had it for more than a year, the condition affects the tissues permanently and a cure is extremely unlikely.

Sigh. Will it never end....

Bram.
__________________
CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
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"Thanks for this!" says:
AZ-Di (04-07-2014), PamelaJune (04-07-2014)