Please don't misunderstand what I am saying about clinical trials. I'm not making a criticism of this centre. I'm merely looking out for your safety and because I know a lot about clinical research rules and practice, I'm saying you need to check carefully before you get involved in any trial to ensure the people carrying out the research are properly regulated for your own safety. Even with a drug that shows promise, things can go wrong for people.

It is very important for your safety that if you decide to take part in a clinical trial that you are safe. Anyone conducting medical research and drug trials has to abide by comprehensive regulatory and ethical rules. This is why it is rare for a small commercial centre to run a trial.

I suspect that one of the doctors they have has an attending position at Beth Israel in NYC and that centre is involved in an IvIg clinical trial. It you are keen to look at being involved in such a trial this may be a route in, alternatively, contacting the named researcher at Beth Israel may be the fastest way and as I said you can check your eligibility online before you do anything else.

This centre has a rather outdated description of CRPS on their website which is one of the things that alerted me to raise a concern. I'm not saying don't go, just be careful and evaluate it objectively to keep yourself safe.