Welcome to Neuro Talk. You found a good site with compassionate people. Anytime we have to deal with such medical issues, it helps to have a few friends. You will make friends around the boards here, and it will help you to deal with your medical issues.
One thing that may help in talking to all of us, is to break your paragraphs a part a bit more. Your posts will be easier to read.
Glad you have a good Neurologist. That is the kind of doctor I would seek first. You also have more than one issue going on. If at all possible seek a physiatrist. (Not a head doctor). This type of doctor, treats the whole person, not just a set of medical problems. They tend to think outside the box a bit more than the average doctor. Remember to bring your husband with you to your appointments when at all possible. Doctors tend to pay attention better, when someone else is in the room with you for discussion.
Keep a journal of all your symptoms, list all things you are experiencing.
Did you have a fall or some kind of injury to your head in particular?
Sorry the LP hurt. Normally they don't hurt like that. You also can tell them to stop during any procedure where you are not comfortable. Most of the time they want it to go smoothly, and will do what is necessary to make you more comfortable, with less pain. There is something called Doppler, a machine to help guide the needle if they have trouble. Floroscopy is another in use to help guide the doctors. I have Doppler, just to draw blood, as my veins aren't so good at this point in my life. I don't like them hunting and digging for a vein. Two stabs and I ask for the help.
There are many forums to explore. Break down the issues you have, and more people will be along to try and help. You are young, that is on your side toward healing. Just believe you can get better with time and therapies. I wish you all the best Boo. Again welcome to Neuro Talk. ginnie