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Old 04-07-2014, 03:39 PM
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Maggiemayhem Maggiemayhem is offline
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Join Date: Oct 2013
Location: Prescott, Arizona
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Maggiemayhem Maggiemayhem is offline
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Maggiemayhem's Avatar
 
Join Date: Oct 2013
Location: Prescott, Arizona
Posts: 38
10 yr Member
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Quote:
Originally Posted by AnnieB3 View Post
I should've been more specific. Go see a primary doctor. Neurologists are internists to begin with, however, they focus on neurology. An internist or GP can look at ALL possibilities for what might be going on.

Specialty doctors might pooh-pooh new symptoms because it's out of their realm.

Some people don't do well on Timespan. And if you take the "regular" Mestinon in addition to it, you can have overdose symptoms. Did your neuro tell you that?

Please talk to a PCP about what is going on.

Annie

Hi Annie, thanks for the clarification. I have a new pcp (my previous dr retired due to ACA). He agrees that I do indeed have MG. His advice is to go home and meditate. He also suggested hiking to build up my muscular strength. I think I need a new pcp, haha.
I quit taking the "regular" mestinon as soon as I started the timespan. So far so good. That clenching feeling persists however, as well as that creepy nerve endings feeling in my arms and legs. My neuro has an associate that is an internist. I believe I'll schedule a consult with him (hiking indeed)
Thanks again for your advice and support
Jan
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