Hopeful, you are exactly right.

That is exactly what I have been doing, thinking of a future of this not really the pain in this moment. All I can seem to think of is many, many, more years stuck on my butt missing life.

You are absolutely correct, being thankful and learning to appreciate each day is exactly what I need to do. I guess this past week has been my "pity me" time and now its time to figure out how to live with this disease.

I did manage to get my appointment moved up to April 16 so that is good, I guess. Not sure what to take, expect or request. After 2 years reading here, I now feel so overwhelmed that nothing is staying inside my head, it has all flown out.

Thanks Hopeful, for very encouraging words! You ARE blessed, for sure, even through your pain.