Ali have you been tested for Lupus? I know a lot of our symptoms mimic things and its hard to tell what exactly is going on. But yours REALLY mimic lupus.
I developed epilepsy after a surgery and RSD came on. I still believe they are very much related since nobody in my family has a history of epilepsy and I didn't develop it until I was 19 and it was after complications from surgery and RSD.
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Originally Posted by ali12
Thanks Vrae, means a lot.
So sorry to hear about your fainting episode, I know just how scary they can be.  SO glad for your sake however that it was only a one off and really hope that it doesn't return.
I will definitely keep you posted as to what the tests show. I go in two weeks (22nd April) and will be spending 4 days in hospital. I'll be having numerous tests including two tilt table tests, blood tests etc. Many of the tests I have had before but these are much more in depth. I'm dreading them as I know how ill they made me last time but hopefully they will give me some insight into how can help.
It sucks as RSD is enough to deal with, without all of this. I constantly have chronic pain then migraines, dizzy spells, sickness, fatigue, nose bleeds etc thrown into the mix... as I'm sure you can imagine, it is really hard to deal with and no medications have helped so far so here's hoping once the test results come back they will have an idea on how best to treat me.
I hope you're doing well and thanks again for your support,
Alison |