I'm so sorry for your unrelenting headache - I had a migraine once that lasted for nine months and I was miserable - I can only imagine how frustrated and "over it" you are after having been in pain for so long.
I honestly don't have any helpful thoughts or experiences, but I wanted to let you know I'm praying for you. I understand the desire to just be able to DO something again. My want-to-do list is so long, and every day I wake up determined that today will be the day I make some headway . . . I usually don't, but I start out every day with the best of intentions. I think that is the key for me - to keep hanging onto the hope that "today" will be different.
Praying for pain relief for you today.
=Becky