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Old 04-08-2014, 09:16 AM
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dmplaura dmplaura is offline
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Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
dmplaura dmplaura is offline
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dmplaura's Avatar
 
Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
Default MS...and now, a Raynaud's syndrome DX?!



Okay, so I figured M.S. was just being screwy with me the last few years with my body temperature and whatnot (I'm always cold cold, especially fingers/toes). Then I wondered if it was perhaps low body fat/weight % or something, but my doctor assured me all along that I was healthy in those respects.

So this Winter, I noticed whenever I'd be out, not in really brutal cold, but in damp moderate cold, my toes would ACHE. Horribly. I had to stop many a time at the entrance to Wal-mart and rub my feet through my socks because I thought they were frozen and I'd got frostbite or something.

This went on for a while, off and on. Then, on a trip one day to Costco with the hubby, I went to get our membership card out of my wallet, and he gasped at the sight of my right hand - my fingers were Smurf blue. I assured him "It's okay, I've seen 1 or 2 fingers turn black and blue before... my Nana had this happen, it's probably something I inherited...". Never did I think to take any photos. After Costco, we went to another store, and it was a bit warmer in there (me with hands in pockets) and the ache. Oh my gosh... my fingers were throbbing!!!

So at this point hubby insisted I go to see the doctor about this. I called, and the secretary asked "Do you have photos of this?". Good point, no I didn't.

So, fast forward a week or so, out again, came home, feet throbbing and aching, take off boots and socks and voila. White toe, red toe, 2 white toes, 1 big blue toe, ball of foot has white patches randomly scattered.

Other foot in pretty much the same shape. Plenty of photos taken.

So I see my GP and wouldn't you know it? She says right away "That's Raynaud's syndrome...". Having heard of Raynaud's before, not surprised (I've seen the photos of the hands and feet). So good to have a diagnosis, but darn, another things?! Really?!

I don't have "Raynaud's Disease" she assured me, because they've tested me a few times now for AI conditions, where IF I had the disease they'd have seen the markers in my blood, and that's always checked out fine.

So it seems I have the syndrome rather than the disease, and it could progressively (and likely will) get worse over time.

Not taking any medications for this now, she just told me to watch out for signs of it and to be sure I can restore circulation etc to the areas affected, avoid cold & damp, etc.

Fun fun!

Anyone else familiar with Raynaud's around here? I've only skimmed 1 entry on the nets about it, so I am not overly familiar. Can it be a secondary symptom to M.S.?

Hope you've all been doing well!
__________________
2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
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