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Old 04-08-2014, 01:17 PM
Raigne Raigne is offline
Junior Member
 
Join Date: Feb 2014
Location: Phoenix, AZ
Posts: 41
10 yr Member
Raigne Raigne is offline
Junior Member
 
Join Date: Feb 2014
Location: Phoenix, AZ
Posts: 41
10 yr Member
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Darlene, "Once a Texan, Always a Texan"? I LOVE IT! I'm a Texan. I don't currently live in the world's best place, but no matter where I am I always find another Texan.

Thank you so much for your advice (and I do remember you from your sweet welcome when I joined this forum!). I intend to stay with the Kepra as I actually do feel better on it. Just that one day freaked me out. The dr said I was probably heading for that regardless and it was good I'd been diagnosed and started on the meds before it happened. Can you imagine that happening with me still having no clue I had epilepsy?? Talk about freaking out!

Because of my special circumstances with all the brain/spinal/autoimmune diseases my specialists are all Barrow-trained (Barrow teaching hospital here in Phoenix). I will ask her on my next appt if she can recommend an epilepsy specialist from Barrow so I can do what you've recommended. I know that she's a specialist in Neurology, but she's also extra trained on other things. I know she has some special EEG training, etc but not sure about her Epilepsy specialization. I want to get the most and the most clear information I can. We need to have a family training session so that we're all aware of what could happen and what to do if a seizure does happen and Daddy isn't home.

I have a friend with Epilepsy who's only had 6 seizures in 16 years and she said each time is because she accidentally forgot her medicine. Did you have breakthrough seizures at any time? I'm so glad you were able to have the surgery to stop the seizures. That must be such a relief!!

Also thank you so much for the info on the B12. I'm going to the Vitamin Shoppe tomorrow to stock up on my Potassium, etc and I will add B12 (1000 mcg) into the mix. I really appreciate your input, because I have no clue about any of this stuff. The dr. is making me take the medicine for a month before coming back in - though if I'm having any difficulties I can come back in immediately. She wants me to keep record and write down questions so I can not forget to ask things.

I'm babbling again...I do that often... Thank you for being here and for offering your advice, Darlene. I really appreciate you.
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